Second Battle, Same Me

Tag: health

  • The Steroid Cycle (AKA Punkinhead Squarepants Meets Bitchy Witch Woman)

    As I approach my last chemotherapy treatment, I have finally figured out the cycle of how chemo affects me.

    Only took me five months.
    Clearly, I am a genius.

    Here’s the thing no one really prepares you for: along with my chemo IV cocktails come some lovely liquid steroids. And when I have the long chemo days, I also get to take a whole lot of steroid pills.

    One hundred and twenty mgs a day.

    Hence the transformation into Punkinhead Squarepants, combined with Crying Witch Woman, mixed with Can’t Sleep for a Week, topped off with Bitchy Bitchy Bitchy.

    It’s a stunning look. Truly.

    Tomorrow I take my last steroids. Which leads me to wonder…
    How long does bitchy bitchy take to go away?
    Asking for myself. And for everyone who loves me.

    Another thing I’ve finally figured out: after the steroids pile on, the exhaustion and misery pile on too. Enter the deep, deep hole.

    Now, are you supposed to quit steroids cold turkey?
    No.
    But that’s exactly what happens every long chemo week.

    And every time, the hole gobbles me up.

    This week—because it’s the week before Christmas and not a single decoration is up—I am trying very hard to stay outside the hole. I’m allowing myself to look into it, but not climb in and unpack.

    Next week should be my last chemo treatment.

    But it’s not the end.

    Anyone who has ever been through this knows that it never really ends. The side effects linger. The fear lingers. You become a person who questions every symptom:

    • My ear hurts — cancer.
    • My nose is running — cancer.
    • I stubbed my toe — must be brain cancer.

    It takes a toll. And it never completely goes away.

    I was almost there once.
    Twenty-one years since my last cancer. I was almost at the place where cancer was no longer my go-to diagnosis.

    And then I found a lump on my back.

    And it all fell apart.

    So here I am again, with my old go-to firmly back in place.

    None of this is to say that I am not grateful—because I am.
    Grateful to God.
    To family.
    To friends.
    To Sassy.
    To sunshine.
    To the universe.

    Grateful for another chance to remember just how precious life is.

    I fully intend to live it.
    Fully.

    It just might take a little while.

  • Chemo Chronicles: Live from the Lounge of Liquid Courage

    Reporting live from the Chemo Room, folks, where the IV poles sway and the recliners are almost comfortable. It’s 10:30 a.m., and this joint is hopping — every single chair taken. That’s right, the chemo lounge is standing-room-only (well, reclining-room-only). I haven’t seen this kind of turnout in eleven visits. Clearly, today’s the day everyone got the “Let’s poison cancer!” memo.

    To my far right sits a young lady with all her hair. All of it. Long, shiny, shampoo-commercial hair. Naturally, I had to investigate (journalistic integrity, people). Turns out she’s here for an iron infusion. Bless her. May her iron rise and her hair remain glorious.

    Meanwhile, I stepped away to the restroom and came back to find the man to my immediate right completely covered by a blanket. Like, entirely. Head completely covered, a human burrito of concern. And you know in this room, we don’t talk about dead people — it’s bad mojo. So yes, I stared until I saw his chest rise and fall. Whew. Crisis averted. No grim reaper sightings today.

    Now, on my left sits a woman who clearly did not get the chemo memo about looking half-dead. She looks fabulous. Black shiny hair (real — I checked, again, reporter skills), perfect makeup, and an outfit that screams “Cougar Christmas Chic”: black sweater, leopard-print pants, and matching boots. I want to be her when I grow up.

    Across the room, two elderly gentlemen (okay fine, probably my age, damn it) are having the time of their lives chatting about everything under the sun. I’ve seen both of them here before, alone and quiet, but today? They’re laughing, talking about old times. (Sadly, I remembered a lot of it myself.) But it’s nice. It feels like a tiny bit of joy snuck in with the saline drip.

    Somebody’s in Mama’s old chair today. I haven’t seen her in weeks. Maybe she’s cured. God, I hope she’s cured!

    And in the far corner? A little gaggle of women talking about Christmas crafts they’ve made. Glitter, glue guns, and garland galore. I wish I could join that table, but a reporter’s got to stay on her beat.

    Fast-forward to 2:30 p.m. The chemo crowd has thinned out, leaving just me and the two gents — still solving the world’s problems and condemning the evils of some drug or another. The room hums quietly now. I can see the sunshine pouring through the window, a soft reminder that there’s life happening outside these IV poles.

    It’s been a good day in the chemo room.
    No deaths. Some laughs. A little envy. A little sunshine.
    And me — still here, still reporting.

    Chemo Chronicles: signing off until next drip.

    Breaking News

    The gentlemen just told their age. I am AT LEAST 10 years younger. Boy, I feel even better now!

  • The Great Escape (For Now)

    It’s been a great week — and I’m as shocked as you are.
    Five whole days of sunshine, and I finally crawled out of that dark, muddy hole I’d been sulking in. And let me tell you, it was fantabulous!!

    Sorry to be AWOL from the blog, but honestly? It felt too good to feel good. I didn’t want to think about cancer, chemo, or any of that. AT. ALL.

    Instead, I did totally normal, boring, glorious things. I cleaned my house – well some of it. I made spaghetti sauce from scratch. I sat in the sunshine — at home and by the lake. I even caught myself smiling like some Hallmark movie extra.

    But (and there’s always a “but” in Chemo Land), today is chemo day. The damn hole is waiting with its arms wide open. I can almost hear it whispering, “Come on back, sweetheart.”

    And I don’t want to go. Not to chemo. Not to the hole. Even though there’s only ONE MORE left after today — I still don’t want to. Because the hole will be waiting, and the body and mind both know it. That’s just how chemo works: cumulative exhaustion and a side of psychological warfare.

    But I’m doing it. Because sunshine weeks are worth crawling out for. And after this… there will be only one.

  • Digging Toward the Light

    So, you haven’t heard from me for a while.
    But trust me, I’ve been thinking about you.

    I’ve been down in a deep, dark hole — the kind that swallows up your days, your plans, and your sense of humor. Pain took the wheel for a while, and confusion rode shotgun. It wasn’t pretty.

    But here’s the thing about holes: if you can’t climb out, you can at least start digging toward the light.
    And thanks to some pain meds that actually work, I’m doing just that — one shaky, stubborn scoop at a time.

    You’d think that being this close to finishing chemo (only two more on the schedule!) would have me doing cartwheels down the hallway. Spoiler: it doesn’t.
    Instead, I’m more afraid now than I was at the start.
    Because what happens after?
    What will the next PET scan show?
    Will this be the end of treatment — forever, for now, or not at all?

    So many questions, none with clear answers. And when you’re tired, those questions echo louder.

    I’ll be honest: I look like I’ve been through a war zone — round-faced, square-bodied, and about seventy-five years older than my birth certificate says. Nothing fits, not my jeans, not my energy, not even my reflection some days.
    But maybe that’s okay.
    Maybe this version of me — the one with no eyelashes, no patience, and no filters — is exactly who I’m supposed to be right now.

    Because here’s what I’ve learned in the dark:
    Hope doesn’t live on the surface.
    It hides deep down in the cracks of you, where the light can reach only when you’re still enough to notice.

    And I think — just maybe — I’m starting to see a glimmer again.

    So if you’re in your own hole right now, hold on.
    Take the meds. Ask for help. Complain loudly. Laugh when you can.
    And when the light starts to peek through, even just a little — don’t question it.
    Just climb toward it.

    I’ll meet you there.

  • Happy Thanksgiving

    Hi everyone, it’s been a rough week. The cumulative effect of chemo is taking its’ toll. I wrote this last week at chemo and saved it for today. I hope you find love, hope, and gratitude at Thanksgiving.

    Sitting here in the chemo room — hour five — and I am tired.
    Tired of sitting.
    Tired of waiting.
    Tired of watching the faces around me — some blank, some worried, some so quiet you can almost hear their thoughts.

    There’s a look that settles over this room sometimes.
    It’s the “Will I still be here next Thanksgiving?” look.
    And some, bless them, are already convinced they won’t.

    But the truth is, none of us really know.
    Not even those of you who aren’t sitting in recliners hooked up to IV poles. Life doesn’t come with guarantees, not even with the turkey and dressing.

    What I do know is this — hope is sneaky.
    It slips into the room in the form of a grandchild’s text, a photo from a friend, or a nurse who calls you “sweetheart” like she means it. It sits in the corner, humming softly, waiting for you to notice it again.

    Maybe this year, we can all — every one of us — choose to be grateful. Grateful for still being here, for one more laugh that turns into a snort, for one more hug that lingers, for one more text or phone call that starts with, “Just checking on you.”

    Whether you spend Thanksgiving surrounded by family or curled up quietly with your own thoughts, I hope you feel love reaching toward you.

    Because it’s out there — in every friend who calls or texts, every family member who worries, every person still fighting their way through another long day.

    So here’s to being here.
    Here’s to love that holds steady.
    Here’s to hope that won’t quit.
    And here’s to many more Thanksgivings — together!

  • **📰 Chemo Chronicles: Dispatches from the Front Lines of Infusion Nation

    By: Pattie Presswoman, your roving, slightly woozy, always-observant reporter

    Ladies, gentlemen, and all you brave souls tuning in from the comfort of your recliners, heating pads, or emotional support snacks—welcome back to another thrilling episode of Chemo Chronicles, brought to you live from the bustling (or not) newsroom of Infusion Room 3.

    Let’s set the scene.

    Last week, the chemo room was—how shall I put this delicately?—slower than a sloth on Benadryl.
    My side of the room was so still I swear I heard my own thoughts echo.
    (I know… “dead.” I said it. I apologize to the universe immediately.)

    Chair 8 Guy?
    He got thirty minutes of whatever they were pumping into him, hopped up like he had a dinner reservation, and evaporated.
    Lady across from me? Same story. Whoosh. Gone before my IV pole could say goodbye.

    Meanwhile, yours truly sat there marinating—slow-cooking like a pot roast.

    Five minutes before I was finished, a woman was wheeled in, clearly looking at me like I was sitting in her rightful throne.
    I told her and her daughter, “Promise, I’ll be out in five.”
    But people on drugs—I mean this with all the love in my heart—have the patience of caffeinated toddlers.
    They want the show started and they want it now. She picked another chair.

    When I was done I gathered my blanket, the nurse unplugged my little robot helper, and I strutted out like a seasoned pro.
    And that’s when I realized…

    I had been in the ghost town half of the chemo room.
    When I walked toward the exit, suddenly things got loud. Busy. Alive.
    The right side of the room? PACKED.
    I mean, it was like they were hosting a tailgate party over there.

    Chairs filled. Voices chatting.
    One lady knitting like she was in a speed competition.
    A man crunching ice like he was digging for gold.
    The nurse on that side looked like she needed a medal… or a margarita.

    People are funny like that.
    No assigned seats, but we all swear we have a spot that’s ours.
    Whole empty row? Doesn’t matter.
    If someone’s in “your chair,” the universe feels slightly misaligned.

    As I passed the bustling side, my friend spotted me and waved with the enthusiasm of someone finally seeing civilization after wandering the desert.
    I waved back, we both grinned…

    …and then I got the hell out of there before anyone tried to assign me a seat, a job, or a conversation about their neighbor’s cousin’s hairdresser’s cancer journey.

    And that, dear readers, concludes this week’s thrilling broadcast from Chemo Central.

    Until next time—
    This is Pattie Presswoman, signing off and rolling out

  • Cherries, Almonds, and a Smart-Mouthed Sidekick

    Two days ago, I got the happiest kind of news: the chemo is working!

    Cue the confetti cannons, lime-green ribbons, and one happy little red bird doing loop-de-loops over my head. After weeks of wondering, worrying, and silently negotiating with the universe, I finally got the word that things are shrinking. Me! Shrinking things!

    The celebration continued with a long but surprisingly pleasant day in the always-entertaining chemo room — that magical land of heated chairs, cold IV poles, and nurses who could moonlight as comedians. All was well in my soul.

    Luke and I drove home talking about the future again, like normal people do. I could actually breathe again. I swear I felt my shoulders drop three inches from relief. For the first time in months, we weren’t just surviving the moment — we were daring to plan what comes next.

    And then came yesterday.

    Apparently my brain didn’t get the “we’re okay now” memo. Between the pre-programmed crazy in my head, the toxic cocktail dripping through my veins, and the endless wisecracks from that internal smart-aleck I call Chemo Boy, peace didn’t last long.

    My “quick nap” turned into a full-blown horror flick.
    Somewhere between hour two and four, I dreamed I was being attacked from the inside — an Invasion of the Body Snatchers situation starring… wait for it… cherries and almonds.

    Yep. In my subconscious, the once-monstrous “cancer nodes” became produce aisle invaders. They multiplied, pressed, and squeezed until I thought I’d explode into a fruit salad. I don’t do horror movies. And now, apparently, I don’t do long naps either.

    When I woke up, sweating and slightly homicidal toward Chemo Boy, I did what every rational cancer fighter does: I reread the PET scan report and the doctor’s notes. Twice. Okay, maybe three times.

    And here’s the reassuring truth: I am no longer invaded by cherries and almonds. The latest scan says it’s down to a pinto bean and a pea.

    That’s right — my invaders have been demoted to side-dish size.

    So I can stop holding my breath again.

    Because here’s what I know for sure:
    I am in this battle until the very end.
    I’m going to beat this cancer.
    And one of these days, I’m going to silence that sarcastic little Chemo Boy once and for all.

    (Maybe I might miss him a little. NOT A CHANCE!)

  • Chemo Chronicles V5: What do you call this room?

    What do you call a room with four women and no talking?

    I’ve been thinking about it. It’s clearly the chemo room, but that doesn’t begin to cover it.

    It might be a nap salon — where no one asked for a blow-out but we all left a little lighter.

    Or maybe a spa for the terminally exhausted, featuring the latest in drip-infused “glow from within” technology.

    Some days it feels like the quiet car on the Cancer Express — no loud talking, no snacks, and you’re not sure where you’ll end up, but everyone’s ticket cost too much.

    The Waiting Room for the Brave, perhaps, except there’s no waiting. We’re doing the thing. Just quietly.

    This week there were four of us. All women. All lined up in our recliners like power stations plugged into perseverance. Within minutes of the “pre-drug” drip, every single one of us was out cold. No chatter. No reality TV. Not even the usual IV-pole squeaks. Just four warriors in soft socks, drifting off under fluorescent halos.

    I had about ten minutes before my own eyelids surrendered, so I took inventory:
    – Chair 4 had really good hair and shoes. Definitely winning chemo couture.
    – Chair 3 was already asleep—basically a blanket with a pulse.
    – Chair 6 chatted with the nurse, then disappeared under her pillow. Relatable.

    And then silence. The kind of deep, unbothered quiet you don’t get anywhere else.

    When it was over, we rose like polite zombies—unplugged, gathered our stuff, and shuffled out with the reverence of churchgoers leaving midnight mass. No words necessary. We knew.

    Whatever this room is—a sanctuary, a spa, a silent sorority—it’s ours.

    Until next time—may your drips be steady, your naps restorative, and your IV poles never squeak at the wrong moment.

  • Becoming, Again (Day 2)

    (Or: Somewhere Between the Couch and the Cosmos)

    Time is weird.
    I’m calling this Day 2, even though the calendar swears otherwise.
    But my cells, my soul, my spinning little chemo-altered molecules—they insist Thursday was Day 1.
    So Day 2 it is.

    Yesterday’s question: Do you ever wake up and wonder where YOU went?
    Today’s realization: apparently, “becoming” requires traveling somewhere else entirely—no luggage, no return ticket, just a brain on shuffle.

    Chemo was short, mercifully.
    I even came home with my jet-pack—my white-cell superstarters ticking quietly on my arm, a tiny biochemical fireworks show set for 1 p.m.
    And then… I disappeared.

    I slid into bed like melting butter.
    Shivering, sweating, freezing, burning.
    Fan on. Fan off.
    Every molecule arguing with its neighbor about the thermostat of existence.

    Time folded in on itself.
    When I woke, the light had shifted but nothing else had.
    I drifted to the couch, a parallel universe where gravity hums louder and blankets weigh more than regret.
    I didn’t eat. I barely sipped water. I just floated in and out of body, like my brain had clocked out for interdimensional maintenance.

    Around 6:30, Luke appeared—steady, sun-warm—and said, “Come sit by the water.”
    He might as well have said, Come back to Earth.
    I sat beside him, blinking at the ripples like they were breathing.

    My mind was mushy honey. My thoughts, ping-pong balls in zero gravity.
    Winnie the Pooh would’ve understood. He said it loud and clear “Did you ever stop to think, and forget to start again?

    So yeah, I was here yesterday. Physically.
    But mentally? I was off somewhere between the stars and the shivers. Maybe that’s what becoming really is—your brain goes on a field trip to rearrange the furniture while your body holds down the fort.

    I wonder what version of me will step off the bus next time. I wonder if there will be a green sofa,

  • The Cost of Cancer vs. The Currency of Compassion”

    Have you ever stopped to think about the actual cost of fighting cancer? Not the emotional toll — we all know that part is priceless — but the real dollars and cents.

    When I first began this journey, I had no idea how expensive staying alive could be. The surgery to remove the lump that started it all: $1,700. Not terrible, right? That’s what I thought too.

    Then came the PET scan — the big one that lights up your insides like a Christmas tree to find out where the cancer might be hiding. Price tag? $14,000. (And yes, it found something glowing.)

    Next up: the regular oncology visits. I’ve stopped trying to calculate every single one, but let’s just say each appointment includes a series of blood tests— about $4,000 a pop.

    And finally, chemotherapy. The heavy hitter. Average cost: $54,000.

    Those are the numbers when everything goes well.

    Now, before you panic, here’s the good news: I am incredibly fortunate to have a Medicare gap plan through AARP. My out-of-pocket costs are less than $1,000 a year. It’s not free — it’s actually a bit pricey upfront — but that plan has been worth every penny for the peace of mind it brings.

    I’m not sharing this to scare anyone. I’m sharing it to prepare you. Because one of the biggest lessons cancer has taught me is that being informed is a form of self-care.

    If you don’t have coverage that will protect you in a crisis — start asking questions now. And if you’re already in the middle of the fight and feeling overwhelmed, don’t hesitate to ask for help. Every cancer center has a social worker who can help you navigate the maze of costs, grants, and support programs. There are even organizations that will send volunteers to clean your house for free.

    Yes — free. Sparkling kitchen, courtesy of kindness.

    And to those of you who are fortunate enough to have extra, please donate to a cancer cause. There are so many worthy causes – find one and donate. Even $20 helps.

    The truth is, no one fights cancer alone. And no one should have to.

    If you ever find yourself sitting on hold trying to sort out insurance, bills, or assistance — call me. I’ve practically earned a Ph.D. in waiting on hold. 😊

    Because helping each other through this is the real currency of healing. 💚

    As stated many times, I cannot draw and I rely on AI to draw the pictures as I describe them. I did not describe two phones – or at least I did not think I did. But they are awesome anyway!