Second Battle, Same Me

Tag: #Blood Cancer United

  • What do I really really want

    I just want it to be over — magically over. Not some haunted, never-leaving-for-good over, but over like I don’t have to do this anymore. Plain and simple. No more appointments, no more counting pills like prayer beads, no more scheduling my life around naps and pukes. Is that too fucking much to ask?

    I know the truth: you have to go through the damn thing to get past it. You can’t short-circuit the mess. You have to slog. So here I am — slogging. Hazy brain days that feel like I’m moving through molasses. Brainless moments where I stand in front of the fridge like it’s a conspiracy. Rest when my bones beg for it; heal when my body remembers how; poison because science says so; repeat because the calendar is a cruel comedian.

    Between the bleak and the boring, what I really want is the tiny, ridiculous stuff: to write in peace and light without the guilt that I should be “doing something productive” while I wait for the next appointment. To sit at the kitchen table with my laptop and not have the cloud of “what if” hovering over every line. To drink coffee that’s still hot. To walk outside and not count steps like they’re a report card. To have a normal week that does not begin and end with an IV drip and a list of side effects.

    Also? I want to shoot a fire arrow into this cancer and blow it the fuck up. There. I said it. There’s the part of me that wants to be dramatic and violent and victorious all at once. I want a literal and metaphorical kaboom — lights, confetti, the whole over-the-top ending to this chapter. Tell me that’s unreasonable and I’ll roll my eyes and bring the fireworks anyway.

    And listen: I’m conflicted. I can want peace and quiet and also want to scream and torch the thing that put me here. I can be grateful for the hands that hold me and furious at the time it steals. I can laugh at myself for crying over a lost sock and then sob over the way the chemo makes my bones feel like someone took a jackhammer to them. Cancer doesn’t come with an instruction manual that says “how to be graceful.” It comes with a lot of improvisation, a poor soundtrack, and the occasional emergency snack saved by a patient husband I nicknamed my own Luke Skywalker.

    So I keep going. I show up for the naps and the meds and the ridiculous moments because there’s still light to find. There are small mercies — a friend who drops off a pie, a dog that insists on dragging me outside, a good TV show that distracts for forty blessed minutes. There are stories I didn’t think I could finish that surprise me by being halfway decent. There are mornings when my head clears and I can see color again, and those mornings are holy.

    Mostly I keep going because I refuse to let this story end with me never coming back over it. I want the ending where I walk out the other side — bruised, scarred, wiser, still snarking — not looping back into the same damn place. That’s the stubborn part of me speaking: I want life after this. I want the pages after the battle. I want to play, to laugh, to be boring and ordinary and loud and alive.

    So yeah — I’ll keep slogging. Hazy brain, brainless days, rest and heal, poison and repeat. I will draw in the light where I can. I will fire the arrow in my imagination and shout when I need to. And I will keep looking for the little lights that make the whole thing bearable until one day—God willing—the arrow does its job and this is over for real.

  • Sassy Walks V3: Mailbox Marathons & Midnight Patrols

    Y’all, my mama could use some good thoughts (and maybe a few extra licks). She’s moving slower than a turtle on a hot day. If I didn’t have her on this leash, I swear she’d just wander right off into the woods. Good thing I’ve got her back—well, her front, too.

    The other day, we only made it to the mailbox. THE MAILBOX. I can cover that in about five leaps, no problem. Mama? Not so much. She’s only got two short legs, and let’s just say her butt doesn’t exactly help with the leaping situation.

    But don’t get me wrong—she’s doing her best. She takes her medicine, putters around the house, and always makes sure I get my potty breaks. Sometimes she just opens the back door and sends me solo into the yard. I don’t love it, but I get it. She’s tired.

    At night, I take my nursing duties seriously. I tuck Mama in real tight, then patrol between her and Daddy. I probably wake him up with my “check-ins,” but hey—somebody’s gotta keep an eye on the humans. That’s my job.

    Anyway, that’s all I’ve got for now. Mama’s got chemo again at the end of the week, so I’m saving up my licks and my favorite toys to share with her. Maybe y’all could do the same—send her some good vibes, belly rubs, or squeaky toys from afar.

    💚
    — Sassy

  • Drops of Fears

    Photo by Ali Hassan on Pexels.com

    Tears falling—
    Drops in the vein.
    Never staying, never staining,
    Never easing the pain.

    Drops sliding
    Through the vein:
    Maybe a cure,
    Maybe more pain.

    Tears, fears, flips—
    Drops, stops. Cancer quits.

  • Dry Mouth, Dark Humor, Still Alive

    The day after: the poison comes back to visit like an unwanted in-law.
    It wades where it pleases — stabs, jabs, puddles of outrage in my bones.
    The shoulder cedes first, a tiny drill bit burrowing in until it’s bored its way to the middle of my back.
    My head’s a foggy TV zone and all I want is a long nap, but then the hips join the pity party.

    Is there a silver lining? Sure — it’s passing through. Slowly. Like a moving train that refuses to be quiet.
    Nausea tags along like a bad joke. Dry mouth, too. The more I drink, the more my stomach stages a protest.
    I don’t want to sleep away the days I still own. I don’t want chemo to be the weather report for my life.

    No Tylenol, no Motrin, no miracle dime-store fix. The pain pools and pounds and nobody gets to leave early.
    But here’s the part I keep repeating until I believe it: I am stronger than the fear in my head.
    I can fight harder than my doubts allow. I am more than a count on a lab sheet.
    More than nausea. More than a chair in an infusion room.

    I want to live — not someday, not after the list of “ifs” — today.
    I will live. And if the poison thinks it can make me quiet about that, it can try.

  • Chemo Chronicles V3 Pattie Presswoman Report

    Dateline: Infusion Center, Day Two of Chemo

    Remember how I once reported that some folks draw the lucky short straw for chemo—zip in, zip out—and others get the long version? Well, folks, yours truly drew the very, very, very long straw. I arrived bright-eyed (okay, half-eyed) at 9 a.m. and was still there when the lights dimmed at 5 p.m.. Yes, I closed the joint down. (Closing the joint down sure brings different memories!)

    But here’s the breaking news: it all went smoothly. No adverse reactions. Just hours and hours of people-watching, chair-swapping, and enough drowsy naps to qualify as a full-blown slumber party.

    Morning Beat

    When I arrived, chairs were 80% full (give or take, I don’t actually count). I parked myself on the TV-off side. Snoozing in front of me was a woman clearly shorter than me—a clear sign the universe was sending things in the right direction.

    Within minutes, the room was its usual scene: patients knocked out cold from the pre-drugs, myself included. I lost the first two hours without even trying.

    Midday Shuffle

    By the time I woke, the cast had rotated. The self-appointed Chair 11 Lady was back in position, keeping silent watch over the room and the halllway. A few men had joined the section—both out like lights.

    And then—finally—real entertainment. One nurse strutted in wearing head-to-toe yellow scrubs with matching socks, topped off with a black jacket and black shoes. She proudly declared herself a “bumble bee.” Who was I to argue? For all I know, that’s the official undercover bee uniform. 🐝 She buzzed around until—wait for it—her twin-in-disguise arrived: a regal patient escorted by her husband/guardian/possibly fellow bee agent. I dubbed her the Queen Bee—weary but still dignified. The nurse buzzed, the husband checked charts, the transfusion wrapped, and the hive emptied out.

    For a moment I wasn’t sure if I was in a chemo chair, a bee convention, or halfway down the Yellow Brick Road with Dorothy. Either way, I was definitely not in Kansas anymore.

    Evening Edition

    As the afternoon crawled on, the chairs emptied. Patients left. Nurses clocked out. Until—just me. And three nurses. They never abandon ship, even when they’re itching to go home. By then, I was cranky and this close to bawling like a toddler denied her juice box.

    Finally, my husband was called back, the finish line in sight. I jumped out of that chair faster than a short woman whose feet don’t reach the floor should be able to.

    Tears waited until I got home. Then they came fast, like Biff the Cancer Boy himself screaming “I’m dying!”—melting like the Wicked Witch of the West.

    Closing Statement

    This is Pattie Presswoman, reporting live from the frontlines of chemo. The day was long, the straw longer, but the news? Still good.

    “Good day, and may the good news be yours.”

  • Tired to the Bone

    Yesterday, tired to the bone, I slept in.
    I took a shower.
    I cooked some breakfast.
    Tired to the bone, I rested.

    I changed the sheets on the bed.
    I washed and folded clothes.
    Tired to the bone, I rested.

    I prepared and cooked supper.
    And by the end of it, I felt like I’d spent 24 hours digging a trench with a spoon.

    I used to do all these things without thinking—without effort, without stopping.
    But that was before Cancer Boy moved in and Chemo showed up to kill him.

    Today is Chemo Day.
    And tired to the bone, I’ll fight.

    ✨ Because even when my bones are heavy and my body says “no,” my soul still says “bring it.”

  • The Power of Female Friendships

    Every now and then, my friends and I manage to pull off a miracle—we get together. Not the everyday friends you bump into at the grocery store. Nope. These are the women I see maybe three times a year, if the planets align and nobody’s kids, grandkids, or husbands derail the schedule. We missed some friends this time, but we will catch up next time.

    But here’s the thing: they are my friends. The kind that, when you finally sit down together, it feels like no time has passed at all. This time, we even had a new lady join us—and boom, instant friend. That’s how women work. We don’t need a blood oath or a secret handshake. Just pass the coffee, and welcome to the circle.

    We started with breakfast, and when the sun hit us full in the face, we moved tables. When the sun found us again (because apparently it was stalking us), we moved again. And we just kept talking—about life, kids, grandkids, husbands, hopes, frustrations, the whole messy, beautiful pile. I never really thought much about cancer at all that day.

    There’s something magical about these kinds of conversations. They flow so naturally with women who care, who understand, who aren’t afraid to be real. You don’t need warm-up questions or polite small talk—you just jump right in. And somehow, even though we don’t see each other all the time, there’s always too much to say and never enough time.

    Because here’s the truth: women need other women.
    And I need these women.

    So thank you, my friends, for the laughter, the honesty, the tears, the shifting tables, and the reminder that I’m not doing this life , or in this battle, alone.

    I love you all. (You too Dougie.)


  • Denver and the International Church of Cannabis

    This was technically a business trip for my husband (you remember, my own personal Luke Skywalker—the legendary snack saver). That meant we only had one full day to play tourist. Lucky for me, Denver’s sports teams were nowhere around, so we were spared from being swallowed up in a sea of jerseys and face paint. Instead, we got to do the average touristy stuff—which, for once, was actually perfect.

    We strolled through a gorgeous part of the city. The foliage and flowers were showing off like they’d been waiting just for us, the sky was obnoxiously blue with Instagram-ready puffy white clouds, and the sun drenched us in actual warmth. Nothing I expected, but exactly what I needed. (For the record, “sun-drenched” sounds fancy, but it really means “I should’ve brought sunscreen.”)

    Lunch was at True Food Kitchen, where I got brave and ordered something called the “Bright Eyes” refresher. Ingredients: pineapple, carrot, organic apple, ginger, turmeric, beet, and lemon. Basically, a liquid garden. It wasn’t love at first sip—more like, “huh?”—but by the end I was convinced I could run a marathon. (Don’t worry, I didn’t. Sitting was still on the schedule.)

    Then came the highlight: the International Church of Cannabis. Calm down—no one was passing around brownies or handing out gummies at the door. It’s an old church that’s been turned into a space for meditation and relaxation. Think groovy 70s furniture (the kind you swore you’d never see again outside of your aunt’s basement) and a meditation garden that practically whispered “chill out.”

    The real show, though, was a 30-minute light-and-sound experience. Imagine lying on a church pew with your head on a pillow while swirling lights and fantastic music transport you somewhere between Woodstock and Star Wars. It was that good. All four of us walked out saying, “Yeah, we’d do that again.” And you know that never happens.

    Pro tip: if you want to experience this “elevated meditation” the way it was intended, you’ll need to, um, pre-elevate. The Church doesn’t sell cannabis on site, so it’s a bring-your-own-vibe situation. Locals can even join as members for non-public elevated sessions.

    All in all, Denver gave us one heck of a memory-filled day. Gorgeous skies, questionable drinks, psychedelic pews, great friends, and my hero Luke at my side. Not bad for 24 hours in the Mile High City.

  • My Luke Skywalker

    Is My Hero

    Sitting on the plane,
    mask strapped tight,
    sounding like Darth Vader 
    just for the luxury
    of chasing a normal life.

    Exhaustion hit.
    I was out cold—
    missed the food, missed the snacks,
    missed most of the flight.

    But here’s where the story flips.
    While I was passed out in my personal cloud of exhaustion,
    my own personal Luke Skywalker was on guard.
    Not for the galaxy.
    Not for the greater good.
    For my snacks.

    He saved them. Protected them.
    Like the Rebel Alliance depended on it.

    So sure, Denver was waiting outside the window.
    But the real view?
    The reminder that even when I’m down for the count,
    my own personal Luke has my back.

    That’s not sappy.
    That’s survival.
    That’s love in our language.
    And that’s why Luke is my hero!

  • Planes, Ports, and Protruding Feet

    Planes, Ports, and Protruding Feet

    Got up at 6, left the house at 7, dropped Sassy at the farm by 8:30. She about beat my leg red with that happy tail of hers—dog joy is a full-contact sport.

    Then it was Atlanta Airport time. Biggest and busiest airport in the world . And because I’m apparently allergic to common sense, I refused Delta assistance. Stupid. Stupid. Stupid. So my poor husband shuffled along at turtle pace, pushing both our suitcases and our bookbags, while I trudged like I was reenacting the Oregon Trail.

    We don’t check bags. Don’t ask me why—WE just don’t.

    TSA: Tales of Suspicion and Attitude

    We have this fancy TSA Pre-Check Touchless thing where your driver’s license photo matches your real-time picture. Except mine didn’t. Cue the angry TSA man glaring at me like I was trying to sneak through in a Groucho Marx disguise.

    “Why haven’t you updated your ID?” he barked.
    “Well, my hair was just cut…before it falls out. My numbers were low. I just found out yesterday I could even come.”
    Translation: zero sympathy, double lecture.

    When he finally waved me through, I tossed a snark grenade: “Only my hair changed—the face is the same.”
    My husband, ever the helpful peanut gallery, asks, “Did you take your mask off?”
    No, my darling, I did not assume my license photo included a pandemic mask. Bless his heart.

    Then came the security shuffle. Pockets emptied, bins filled, walk this way. I flashed my “I have a port” card like it was a backstage pass, got sent through the full-body scanner, endured the pat-down, and had my suitcase searched because prescription powder apparently = suspicious contraband. Never a dull moment.

    Socks of Doom

    Doctor’s orders: wear compression socks on the plane. Problem: my legs are 11 inches from knee to ankle and my calves are, let’s say, generous. Walmart and Walgreens had nothing. Husband’s compression socks? Way too long. Solution? Scissors. Cut those suckers down to size and made myself some footless Franken-socks.

    I hated them. So I waited until almost time to board to wrestle them on in a bathroom stall. At one point my bare foot was sticking out into the neighbor’s stall while I grunted, groaned, and fought with fabric. Every time I bent over, the toilet flushed. I was basically starring in my own airport bathroom comedy show. Got them on, but never again. (Okay, once more on the flight home. Then never again.)

    Sleeping Beauty, Airline Edition

    Finally boarded, slapped on my hat, headphones, and neck wrap, and was asleep in less than five minutes. I honestly have no memory of taking off. Two glorious hours gone in a blink. Woke up just in time to find a bathroom and prepare for landing, only to find my husband had scored me two of the best cookies in the world. Keeper, that one.

    Reverse and Repeat

    Off the plane we did the reverse struggle—restrooms, escalators, trains, restrooms again—until we finally made it to the hotel. The room was perfect. I napped. We ate downstairs instead of prowling the streets, and miracle of miracles, the food was fantastic.

    Bonus entertainment: a bridal party taking pictures and friends we came to see. By 6:00 local time (aka 9 past-my-bedtime o’clock), I was tucked back in bed. Asleep within the hour, no regrets.

    Worth Every Awkward Moment

    As Vegan Coach Naomi nailed it after a mountain-biking crash: “Doing shit you want to do is totally worth it—even if you fall.”

    So yes, oncologist, I followed the rules. And yes, friends, the whole chaotic, exhausting, ridiculous day was worth every second (my shamelessly stolen motto). Even if it did end with my bare foot in a stranger’s bathroom stall.

    P.S. I swear I did not wear those crocks! Or short pants. Imagine if the franken-socks were visible. Oh hell no!!